ERN Ithaca: How to interest on rare diseases? - YouTube
19. 1. 202112 zhlédnutíBoard Meeting December 2020Speakers : Prof. Giuseppe ZampinoWebsite: https://ern-ithaca.eu/Twitter: @ERNIthacaLinkedin: https://www.linkedin.com/company/ith...
ERN-Ithaca/Eurordis: Short guide on patient partnerships in…
19. 1. 20219 zhlédnutíBoard Meeting December 2020Speakers : Virginie Bros-Facer, Ph.D.Website: https://ern-ithaca.eu/Twitter: @ERNIthaca / @eurordisLinkedin: https://www.linkedi...
ERN Ithaca: Conclusion on ePAG Assessment Framework - YouTube
19. 1. 20219 zhlédnutíBoard Meeting December 2020Speakers : Dorica Dan & Ammi Sundqvist - AnderssonWebsite: https://ern-ithaca.eu/Twitter: @ERNIthacaLinkedin: https://www.linkedi...
ERN Ithaca Patient Council Quality of life - YouTube
19. 1. 2021Board Meeting December 2020Speakers : Discussion on quality of lifeWebsite: www.ern-ithaca.euTwitter: @ERNIthacaLinkedin: https://www.linkedin.com/company/i...
ERN Animation Video - YouTube
20. 3. 2019640 zhlédnutíEuropean Reference Networks (ERNs) are virtual networks involving Reference Centers across Europe. They aim to tackle complex or rare diseases and conditions...
Was man in den 70ern wusste – und verschwiegen hat | Harald…
13. 10. 2021690 tis. zhlédnutíDer #Klimawandel ist nicht erst seit gestern ein wichtiges gesellschaftliches Thema. Schon vor 40 Jahren haben Wissenschaftler*innen, aber auch #Medien darüb...
ERN-NY Success Coaches - YouTube
10. 2. 2017746 zhlédnutíMeet your ERN-NY Success Coaches!Charmaine Long, Ginger Hannah, John McCarthy, John Saccocio and Susan Vellano.For more information on the Employer Resource...
9 Finanzfehler, die du in deinen 20ern vermeiden solltest…
8. 8. 2021697 tis. zhlédnutíDiese 9 Finanzfehler solltest du in deinen 20ern vermeiden!Unser Depot-Testsieger: https://link.finanzfluss.de/go/depot youtube 411...
Patient video: How to use the ERN RARE-Liver registry: R-Liver…
Před 3 měsíci146 zhlédnutíERN RARE-Liver has established a multicentre European patient registry called R-Liver. The registry addresses a major issue with rare liver diseases which is...
Network to improve care for rare diseases in Europe - YouTube
20. 2. 2020116 zhlédnutíIn January 2020, European patient advocates visited the European Reference Network for Rare Neurological Diseases (ERN-RND). During the meeting, they discuss...
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